EULAR - The European Alliance of Associations for Rheumatology
The European Alliance of Associations for Rheumatology, EULAR, is a non-profit organisation that represents people with rheumatic and musculoskeletal diseases (RMDs), health professionals in rheumatology, rheumatologists, researchers and scientific societies in the field of rheumatology of all the European nations. EULAR aims to reduce the impact of RMDs on the individual and society and to improve the treatment, prevention and rehabilitation of RMDs. To this end, EULAR fosters excellence in education and research in the field of rheumatology. It promotes the translation of research advances into daily care and fights for the recognition of the needs of people with RMDs by the governing bodies in Europe.
Role within PerPrev-CID
Building on its extensive expertise in patient-researcher collaboration, EULAR will play a central role in coordinating patient involvement in PerPrev-CID’s research as well as in communication efforts towards the patient community. In partnership with EFCCA, EULAR will co-lead the establishment and coordination of a Patient Advisory Panel composed of Patient Research Partners (PRPs), ensuring meaningful patient input across all stages of the project. This panel will actively contribute to areas such as research design, data collection, product development, patient recruitment, and communication strategies. EULAR will also play a key role in the project’s dissemination, exploitation, and communication work, ensuring that all activities are patient-centered, accessible, and aligned with the needs of patients, patient organisations, and the broader public.
